The Myasthenia Gravis Association (MGA) works to improve the lives of those impacted by myasthenia gravis, a rare autoimmune neuromuscular disease, which leads to varying degrees of skeletal muscle weakness. The most affected muscles are those of the eyes, face, and swallowing. It can result in double vision, drooping eyelids, trouble talking, and trouble walking.
The MGA serves thousands of patients across Kansas, Missouri, and NW Arkansas, striving to build a supportive community by increasing public awareness, patient education, clinics, support groups, and 1-1 consultation.
The MGA has clinics at the University of Kansas Medical Center, St. Luke’s Hospital, and St. Louis University in St. Louis where patients receive support from MGA staff. 100% of the services the MGA provides to patients are free.
The MGA in Kansas City has been in operation for 60 years. The association was formed by Joan Stackhouse following her diagnosis with Myasthenia Gravis and the lack of a local association for treatment and support. The first charter meeting of the MGA was held at Menorah Medical Center on April 9, 1961. Following a grant from the United Way later that year, the MGA was able to hire its first Executive director.
The MGA hosts a variety of events throughout the year to not only bring people with MG together but to offer an opportunity for friends, family, and other people in surrounding areas to support patients, learn about Myasthenia Gravis, and build a community. The MGA has sponsorship opportunities for Chamber members to promote their business through some of their events.
Their next event is their 10th Annual MGA Triple Crown Showdown 5K, which will be a virtual event held during the week of May 17-24. Participants can sign up at www.mga5k.com. Use the code CHAMBER for a $5 discount.
For more information about the work of the MGA, its programs, and services, contact:
Allison Foss, Executive Director, on 816-256-4100 or allisonfoss@mgakc.org
www.mgakc.org